alzheimers

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2001/5/30
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Recently they diagnosed my dad with the onset of alzheimers.. I was in shock.. As with most people it was hard for me to believe that the man that made me who I am today will slowly slip away from me into his own little world and eventually forget who "daddy's little girl" is.... This scares me....My mom and I are finding this very hard to swallow.. My mom has asked me to keep quite about the whole thing to anyone that even knows my father, it's the pride thng for my dad I guess but keeping this inside really hurts... Not understanding the diagnosis and the outcome of course is fatal I understan but I still don't understand why this happens and why this cannot be treated????? Are there places like the american cancer society & for breast cancer to make people aware of what they are looking for and what ways there are to help find a cure???? any information that you can give me on this would be greatly appreciated.....
Thank you for listening to what my mom calls nonsence, I am just so scared to loose my DADDY!!!!! Thank-you again, Amy


Posted on 2001/5/30 18:28




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2001/5/30
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Dear Amy:

Thanks so much for visiting ElderHope. What you wrote is NOT nonsense. Your questions and concerns are important, legitimate, and for us, very moving. You love him...

While the pride of your father and mother is understandable, it's important that you do as YOU are trying to do: Get as much information as you can. While Alzheimer's Disease (AD) is fatal, it is not necessarily untreatable. There are medications that may help such as Aricept and Exelon. If these are medically appropriate to your dad's situation, they should be started as soon after diagnosis as possible. Also, the Alzheimer's dummyociation is an incredible resource. There should be one in your area. If you go to our Alzheimers LINKS page there should be much information that can help. One of the things that we would recommend you do as soon as you can is to go to this link and request the Caregiver's Survival Kit, a free resource with good information and help. Here's the link: http://www.alzheimersdisease.com/caregiver/survivalkit/

It's understandable that your folks would not want to discuss this. Many people don't. At least for a while. With your help and patience, hopefully they will get the help they need. Please visit us often. If you ask the questions, we or our visitors will try and find the answers with you.

P.S. To find your local chapter of the Alzheimers dummyociation, here's their link:
http://www.alz.org/chapter/

We're thinking of you!

Mike and Barb



Posted on 2001/5/30 20:25




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